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Mastocytosis Update

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Valentine's Party 2015 Lincoln is now 3 years old (and 5 months). He was first diagnosed with mastocytosis at age 6 months. Mastocytosis is a rare skin disease where mast cells are clumped together and can cause an itching reaction when the lesions are irritated or stimulated. The reaction can be caused by foods, temperature, and emotions. Lincoln did go to a dermatologist shortly after his diagnosis. The dermatologist was not alarmed by the extent of Lincoln's condition. As a matter of fact, he had no worries. He said it may go away at puberty. He has 5 lesions total (cheek, chest, back, side, and bottom). Christmas 2014 Last week, was the first time that Lincoln showed a sign of being uncomfortable by a lesion. I was getting him dressed for bed and he was itching the underneath side of his bottom. He said, "A bug bite is itching!" I told him it was a lesion. That lesion popped up when he was an infant around the time of  the diagnosis. I saw it every ti...

Mastocytosis (Urticaria Pigmentosa)

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Probably around January we noticed 3 brown spots on Lincoln. We thought he was getting moles or something. They popped up around the same time. The brown lesion is above his nipple At his 6-month well check (3/19/12), I asked the pediatrician to look at them. She said that moles don't pop up like that so we should have a dermatologist take a look at them. We scheduled an appointment with Joy Chastain's office (3/23/12), which Joe and I have been to for our skin. There are three ladies that work there and the one we were there to see, went to get another lady to look at them too. They were spouting off a lot of medical terms with their predictions. Ultimately, they recommended a biopsy so we could see what they were. Joe held Lincoln tight, which he didn't like. They injected numbing medicines and then they cut a piece of the one on his back. It was over quickly. I didn't like my babies' smooth skin being cut and scarred. We were told to keep it moist with Vasel...